You may have remembered some posts about the Ataxia Burpee Challenge fundraiser we were planning for June.Due to current circumstances with COVID-19, we decided to postpone the fundraiser until next June.It appears that things might start to re-open over here, but we don’t know what the repercussions of that will be yet and feel that […]
Courtney Ng will share how she stays active and how she is trying to increase awareness of Ataxia globally. Although I was born with this condition, I experienced symptoms starting when I was 19 and was officially diagnosed at 25 years old with ARCA 1 – Autosomal Recessive Cerebellar Ataxia Type 1. I used to […]
Mary Gong is here to tell us about her friend Courtney Ng. Courtney is a co-founder of Hope For Ataxia and has ARCA1. Mary’s here to tell us what it’s like to have a friend with Ataxia.
Here’s the story of Mary Sheetz. She’s got SCA8. Learn how she’s dealing with the challenges presented by her Ataxia. Mary lives in Portland, Oregon. 12 years ago, she was diagnosed with Spinocerebellar Ataxia type 8. However, if we look back to the 1980s, that’s when the process that would lead to her eventual diagnosis […]