For the Ataxia Profile this week we will be learning about the story of Chanda Huy. Chanda is working on trying to adjust and adapt to the diagnosis of Spinocerebellar Ataxia that she received a year ago. The form that she has is hereditary, passed down by her father. All of the simple things that […]
Linda Ng is a parent who has also adjusted to providing support in any way that is needed. Here is a peek into Linda’s experience. Her daughter, Courtney Ng was diagnosed at 25 years old with ARCA1 – Autosomal Recessive Cerebellar Ataxia Type 1.
Yesenia Ramos received a diagnosis of Friedreich’s Ataxia when she was 6 years old. She is now 23 and lives in Edmond, Oklahoma with her parents and an older brother who also has FA. Yesenia is very proud of her Mexican heritage. For Yesenia, the road to an early diagnosis began with multiple sprained ankles […]
Jodie Kawa knew from a young age her chances of having a dominantly inherited ataxia, SCA2. Since her diagnosis she has discovered new ways to contribute to helping others as she once was a teacher. She now is very active with the NAF and helps runs the Western North Carolina Ataxia Support Group. I […]