Global Ataxia Support Group

Please read through the Frequently Asked Questions before registering.

Frequently Asked Questions

Weekly Sessions

Join us every Friday!

Once you register for our weekly meetings at 3pm, for example, you won’t have to register again next week. However, the registration for 3pm and 6pm is separate.

TIMESLOT #1

3PM EST (8PM in UK, 5AM Sat. in Sydney, AU)

TIMESLOT #2

6PM EST (11PM in UK, 8AM Sat. in Sydney, AU)

Speaker Sessions

Occasionally we hear from individuals in the disability community that might have some information useful to Ataxians. Also, it’s a way for us to spread awareness who might not know about Ataxia.

Use the arrows to scroll through the videos!

  • Adapting Your Home

    We talked to Terrence Ho about how he has adapted homes for those with disabilities and some tips for those looking to adapt their homes.
  • Yoga for Ataxia

    We had an in-depth discussion with Natalie Marnica about her experience using yoga to help those with Huntington’s disease. We also talked about the similarities between HD and Ataxia.
  • Tai Chi & Balance

    We talk to Sherryl Klingelhofer about how she uses Tai Chi to help thos with Parkinson’s Disease balance better.
  • Current SCA Research

    Here’s our chat with #SCA Researcher Dineke Verbeek, PhD from the #Netherlands about the work she’s doing.#SpinocerebellarAtaxia.
  • Caring For Caregivers

    We’re talking to Janet Edmunson about Caring For #Caregivers.
  • Social and Compeitive Dance For Wheelchair Users

    Dr. Iris Kulbatski talks to us about Social and Competitive Dance for Wheelchair Users.
  • Skating for People with Disabilities

    Our discussion with B.L. Wylie about teaching Skating For People With Disabilities.
  • Shifting Perspectives

    The recording of our talk with Gavin Mogan of Your Move Fitness LLC. In this discussion, Gavin about Shifting Perceptions.
  • “I have really appreciated the whole for ataxia support group meetings because I have met people with Ataxia from all over the United States and other countries even. I’ve met a few people that have just been diagnosed and have a lot of questions, and I have met some people that have been living in coping with Ataxia for a long time. It has been nice to feel like I’m not the only one on this journey. In the support group, I can even offer some ideas not really advice but ideas to other people going through the same thing. And I couldn’t think of one instance recently when we are able to laugh about some situations that we have in common.”

    Mary Beth, SCA15
  • “Attending the virtual support group meetings has been a fantastic blessing. Before my diagnosis I was very social, an educator in the community … Interacting with lots of different people was normal. The Hope for Ataxia Support Group meetings have opened that door once again for me. I’m making all kinds of connections, from all over the world and seeing that living with Ataxia is challenging but possible. No harsh judgment, I love this group!”

    Amy, SCA8
  • “Really enjoy meeting others from around the world and sharing the complexity of life with Ataxia! Attending the Virtual global ataxia meetings helps you to realize you aren’t alone.”

    Jodie, SCA2
  • “Great group! I love talking to others with Ataxia….support, advice, and understanding. Getting to know others’ faces and keeping up to date with them.”

    Becky, SCA28

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