Meet The Team
We are a small team of dedicated people who work hard to spread Ataxia awareness.
Courtney is involved in all aspects of the operations and management of the organization. She works on managing our social media channels, marketing, and strategic campaigns to spread awareness.
Mark is a personal trainer/martial arts coach with Ataxia (ARCA1). He’s in charge of coming up with ideas for campaigns and content.
Veronica Denis was diagnosed with Spinocerebellar Ataxia Type 2 (SCA 2) in October 2018. She edits the monthly newsletter and provides input on spreading awareness for Ataxia around the world.
Dana has SCA2 and had never met anyone outside of her family with the same diagnosis. Then in 2017 I went to the NAF annual conference in Philadelphia and talked with several others. Telling my own and hearing other’s stories was invaluable to me. I help edit people’s stories that appear on the Faces of Ataxia page.
Laura Rhyne Tollin
Laura’s ataxia was first noticed in the 8th grade by a gym teacher and unbeknownst to me, a future doctor. She is also deaf. Laura helps us in getting speakers for our Global Ataxia Support Group meetings.
Sandra has a yet unknown form of Ataxia. She helps us with the website, newsletter, and other technical projects.
Mary Beth Farley
Mary Beth is our sign language interpreter. However, she is also a patient of Ataxia (SCA15). She too would like to reach out to people that cope with and live with Ataxia, all over the world.