Here’s the story of Mary Sheetz. She’s got SCA8. Learn how she’s dealing with the challenges presented by her Ataxia. Mary lives in Portland, Oregon. 12 years ago, she was diagnosed with Spinocerebellar Ataxia type 8. However, if we look back to the 1980s, that’s when the process that would lead to her eventual diagnosis […]
For the Ataxia Profile this week we will be learning about the story of Chanda Huy. Chanda is working on trying to adjust and adapt to the diagnosis of Spinocerebellar Ataxia that she received a year ago. The form that she has is hereditary, passed down by her father. All of the simple things that […]
Jodie Kawa knew from a young age her chances of having a dominantly inherited ataxia, SCA2. Since her diagnosis she has discovered new ways to contribute to helping others as she once was a teacher. She now is very active with the NAF and helps runs the Western North Carolina Ataxia Support Group. I […]
I have heard from many of you that these Profiles are very helpful. I am very glad to hear this…and send a thank-you to all that have allowed me to present their stories to you. In the same spirit, this week I would like to introduce you to Amy Hamrick.
Hey, everyone! Time for Ataxia Profile number twenty…wow! Time is going so fast…it’s hard for me to believe we are here already. I have very much enjoyed writing every profile and hope to bring you more. Some of you reading this will need to step up and send me your information…I only have eight more […]
Hello again everybody! I hope that you all are enjoying the Holiday season…and there is just enough time left in the two-thousand-nineteen year to get in one more Ataxia Profile. This will be number eighteen…and it is my pleasure to introduce Catherine Meredith to you for this writing.
Let’s keep the momentum rolling…with Ataxia Profile number 17. Again, it is my distinct pleasure to introduce Lisa Antonelli Cole to you. Like many of you…I have met Lisa, (as a later photo will testify to:-)), but I look forward to writing this and getting to know her better. This is the purpose of these […]